You're Home, You're Safe, You're Alive!!

Gladly, we returned home on Sunday and the fever is gone. We still don't know what caused it but are grateful that whatever it was, has passed. YIPPEE!
Thxs for all your prayers we know they help our little man. xox

UH O....

On Wednesday night Rocky woke with a fever of 39.8. We headed into our usual (yes, some of the staff even recognise us now!) isolation room at RCH Emergency and Rocky was subsequently admitted to the hospital with IV antibiotic treatment : ( He has caught something, but RCH still do not know what.
So far, the blood cultures have remained negative for a bacterial infection. If it's a virus, there is not really much that can be done in the way of treatment.
Fortunately, his fever last spiked on late Thursday and has been in the normal range since. Hopefully this means that either the antibiotics have killed it off, or what he has of those little T Cells are fighting as best they can against a virus. We just don't know and because he is tested for the 'main' types of bacteria etc, we might not ever know what caused this.
If he remains fever free they will cease the antibiotics on Saturday and see how he goes. The plan is to come home Sunday all being well. I think it's fair to say he'll be okay, but we'll just see what happens following the cessation of the antibiotics. Our dear friends and family, Please keep him in your prayers if you can - thank you so much !! xox

12% and counting...

Hi folks, I have been accused of being a bit slack on this blog...sorry! But the progress on the cells is still slow, albeit moving in the right direction, which we are grateful for. We are so lucky that Rocky's health has remained well.

September came back in the same fashion (overall increase % points 1.5%) to 12%.
We were disappointed to be told the test immunisation failed ie. His cells did not produce a reaction then multiply to fight it off. After my initial panic attack and some questions later to our doctors, we were relieved to discover that this doesn't mean Rocky's cells aren't working. It can take up to about 4 immunisations before the body produces an adequate response. PHEW! Another disaster averted! In my mind anyhow....I love this quote, so apt to this situation and for me, oh, so often...
" I have lived through some terrible things in my life, some of which have actually happened" Mark Twain LOL!! I always think of this when I feel tempted to run away with my thoughts...

Everything else is great with our baby seemingly overnight such a little boy. He is learning lots of signs and has been practising the EAT one non-stop. My fav has to be Rocky signing for something to eat, me producing a nice healthy snack, only to have him hand it back to me and proceed to ask for...you guessed it....more to eat. I guess that's his way of saying, don't think so Mum, I'll have the Smarties if you don't mind...

Well....not much to report. Last lot of bloods taken in September, we are still waiting for results. Fingers crossed they are good...let's hope for 15%! I am feeling optimistic. There is something so great about 2 year olds. Rocky provides daily entertainment with mimicking and 'the smile'. We are working to make the 'smile' more fiendly....I mean friendly LOL!! I do not think it could be more fiendly...check it out!

















It works much better when I actually don't ask him to smile....look at this little angel